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Patients Included


We are proud to confirm that ISQua’s 34th International Conference has achieved Patients Included status.

The Patients Included charter provides conference organisers with a means of demonstrating that their events are committed to incorporating the experience of patients, who are experts in living with their condition while ensuring they are neither excluded nor exploited.

For more information on Patients Included, please visit the website.



Patients Included status is self-assessed and self-monitored. A Patients Included status signifies that the event has satisfied all five criteria as identified in the Patients Included charter:

1. Patients or caregivers with experience relevant to the conference’s central theme actively participate in the design and planning of the event, including the selection of themes, topics and speakers. 

ISQua’s 2017 Conference will run from October 1st – 4th in the QEII Centre in London. As part of the planning process, the Programme and Planning Committee (PPC) contributed to the discussions regarding the theme, tracks and potential plenary speakers for the conference. Members of the PPC include a patient representative (Russell McGowan (Australia)), and a representative from our partner organisation, The Health Foundation (Sibylle Erdmann (UK)). Pip Hardy (UK) joining the planning at a later date and has been involved with planning our opening plenary.

The PPC have actively worked towards encouraging patient and patient representatives to attend the conference as well as being involved within the conference. This was done by developing a patient specific track and making suggestions for the programme that will be of interest to patients. 4 out of our 11 tracks are for topics directly relating to patients while the remainder are also designed with the patient at heart. A list of our tracks can be found on the programme page.

2. Patients or caregivers with experience of the issues addressed by the event participate in its delivery, and appear in its physical audience. 

With our PPC patient representative, we have developed a track called ‘The patient’s voice’ which includes presentations on patient experience, PROMS, co-production, family-centred care, self-management, shared decisions, equitable care, and patient-centred care.

When reviewing the submissions for our 30 and 45 minute sessions we give preference to submissions that include patient collaborations. This has resulted in a record number of patient & care related submissions for ISQua, many of which include a patient being actively involved in the session. We offer a discounted speaker registration rate to anyone involved in the longer sessions, including many patients and caregivers in this.

Patient representives are speaking within our pre-conference session on 'Focusing on the customer: Experiences from mental health and primary care' and as part of our Wednesday Plenary session.

A complimentary exhibition stand has been provided for http://www.patientvoices.org.uk/.

3. Travel and accommodation expenses for patients or carers participating in the advertised programme are paid in full, in advance. Scholarships are provided by the conference organisers to allow patients or carers affected by the relevant issues to attend as delegates. 

ISQua has organised and fully paid for the travel and accommodation for our main patient representatives, Russell McGowan and Sibylle Erdmann. We also offered complimentary registration to several patient representatives and to the World Health Organisation who will support attendees from the patients for Patient Safety group.

Our contacts within the healthcare community in Ireland & the UK suggested patients who would benefit from attending our conference – to date we’ve offered free registration to two patients from Ireland and £200 towards costs and registration to a number of patients from the UK.

If you are a patient or carer and interested in attending the conference please email your expression of interest to Eleanor Keegan (ekeegan@isqua.org). 

4. The disability requirements of participants are accommodated. All applicable sessions, breakouts, ancillary meetings, and other programme elements are open to patient delegates. 

ISQua’s conference will be held in the QEII Centre in Westminster, London. All sessions will be open to all delegates wishing to attend.

The QEII Centre and ISQua are committed to ensuring that all visitor requirements are catered for and work to provide access to all. The QEII staff are trained to provide assistance to visitors with limited mobility as well as other disabilities or needs. The Westminster tube station is nearby which is step free and is served by three different lines which means reaching the centre will not be a problem.

There is a ramp from the forecourt which leads to the QEII Centre front doors and is wide enough for easy wheelchair access. All meeting and conference rooms have step-free access via corridors wide enough to easily manoeuvre a wheelchair. There are elevators throughout the Centre which can accommodate wheelchairs including a fireman’s elevator in the event of an emergency. The seating throughout the centre is removeable therefore wheelchair spaces can be positioned anywhere in the rooms. A ramp to the stage in conference rooms can also be put in place.

Guide dogs, hearing dog or other assistance dogs are most welcome in the QEII Centre.

5. Access for virtual participants is facilitated, with free streaming video provided online wherever possible. 

The ISQua Conference plenary and a number of concurrent sessions will be live streamed through the ISQua website (www.isqua.org). This sessions are freely available for anyone who may not be able to attend the conference. This will be advertised and promoted through our social media, using the hashtag #ISQua2017 and through our mobile App, using notifications. After the event access to the presentation recordings, PowerPoint presentations and e-posters will be available to all ISQua Members and delegates of the conference.